Bringing joy till the last

150509 bringing joy till the last

Seven-year-old Danielle Seah may be bedridden with three tubes sticking out of her throat and stomach, but she is still able to respond to the beat of her favourite song, The Wheels On The Bus Go Round And Round.

During a music therapy session on April 11 in her home, her eyes darted between her father, who was beating a drum, and her sister, Beth, 11, who was strumming a ukelele. Moving in time to the rhythm of the catchy song, her tongue flicked up and down.

“She has lost almost all her ability to move, so we hope to slow down the progress of the disease and retain her remaining functions through music,” said her father, engineer Frederick Seah, 40.

Danielle has spinal muscular atrophy, a disorder that causes muscles to weaken until it becomes hard to move or even breathe.

She is one of the 140 critically ill children that HCA Hospice Care has helped care for in the comfort of their homes since its Star Pals (Paediatric Advanced Life Support) programme started in 2012.


By Janice Tai

Excerpt taken from The Straits Times,
Saturday, Apr 25, 2015


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